Well so far everything is going great they say Tuesday we will get out if not sooner so at least we have a target time we get to leave, we are soo ready to be home again. We will be still have to come 3 days a week until they tell us otherwise. He will also have another echo on the 9th to see what his heart is looking like, he will also stay on two meds for his heart. Just because we are leaving in the next few days we still have a long road ahead of us. He wont be able to go in public places without and if need be he will have his mask on. On a good note he will be able to wander the house on his own and be free from the pole and be able to go outside after a month of being in here. We are waiting to here the results on the engraftment and will update once we know.

This kid is a true amazement to us every single day, he has overcame so much in just 2 years he is an inspiration not only to us but to so many others. He still has a long haul in front of him but we know that he can do it and we are here every step of the way.

Thanking God everday as well as all of you for all the prayers and thoughts!!

With love,
Steph, Tim and Bryson