Home! 09/25/2010
Well we got to go home yesterday around 4PM and we were all happy. We got home and Bryson went straight into his room playing with all his toys. I made him dinner and told him to come here so I could put him in his high chair he is at my feet he lays flat oon his stomach and is rubbing the carpet and kicking his feet did that like three times, crazy kid. He then ate not a whole lot but enough so glad he is at least eating something. Then around 6:15PM the nurse with home healthcare came and showed us how to set up the TPN, his IV meds and all that stuff alot of things to do but it has to be done. We are hoping that when we go to clinic on Monday morning they will go ahead and cancel the TPN but we will see. He has to take 6 meds 2 a day and its not like an adult where they can take one right after another we have to give a little of each slowly, time consuming but he needs them to help with what he is going through. We have to be back at clinic Mondays, Weds and Fri every week until they cut us down to two days and then to one. So a lot of back and forth during the week but at least we are home. Thank you all for the prayers and support we are beyond thankful!! With love, Stephanie, Tim and Bryson CommentsLeave a Reply |
RSS Feed